TY - JOUR
T1 - Perspective developing successful collaborative research partnerships with ai/an communities
AU - Credo, Jonathan
AU - Ingram, Jani C.
N1 - Funding Information:
Funding: This research was funded by National Institute of General Medical Sciences, Grant S06GM127164-04, National Institute of Minority Health and Health Disparities, Grant U54MD012388, the National Institute of Environmental Health Sciences, Grant P50ES026089, the National Cancer Institute, Grant U54CA143925, and the University of Arizona.
Publisher Copyright:
© 2021 by the authors. Licensee MDPI, Basel, Switzerland.
PY - 2021/9
Y1 - 2021/9
N2 - In the United States, American Indian and Alaska Native (AI/AN) people are frequently under-or misrepresented in research and health statistics. A principal reason for this disparity is the lack of collaborative partnerships between researchers and tribes. There are hesitations from both academic Western scientists and tribal communities to establish new partnerships due to differences in cultural and scientific understanding, from data ownership and privacy to dissemination and project expansion. An infamous example is the mishandling of samples collected from the Havasupai Tribe by Arizona State University (ASU) scientists, leading to a legal battle between the tribe and ASU and ending in a moratorium of research with the Havasupai people. This paper will explore three successful and positive collaborations with a large and small tribe, including how the partnerships were established and the outcomes of the collaboration. In addition, the paper will provide perspective of what needs to be addressed by Western scientists if productive collaborations with tribal groups are to be established.
AB - In the United States, American Indian and Alaska Native (AI/AN) people are frequently under-or misrepresented in research and health statistics. A principal reason for this disparity is the lack of collaborative partnerships between researchers and tribes. There are hesitations from both academic Western scientists and tribal communities to establish new partnerships due to differences in cultural and scientific understanding, from data ownership and privacy to dissemination and project expansion. An infamous example is the mishandling of samples collected from the Havasupai Tribe by Arizona State University (ASU) scientists, leading to a legal battle between the tribe and ASU and ending in a moratorium of research with the Havasupai people. This paper will explore three successful and positive collaborations with a large and small tribe, including how the partnerships were established and the outcomes of the collaboration. In addition, the paper will provide perspective of what needs to be addressed by Western scientists if productive collaborations with tribal groups are to be established.
KW - Community development
KW - Cultural competence and cultural safety
KW - Indigenous data governance and data sovereignty
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U2 - 10.3390/ijerph18179089
DO - 10.3390/ijerph18179089
M3 - Article
C2 - 34501677
AN - SCOPUS:85113737205
SN - 1661-7827
VL - 18
JO - International Journal of Environmental Research and Public Health
JF - International Journal of Environmental Research and Public Health
IS - 17
M1 - 9089
ER -