Needs of stroke survivors as perceived by their caregivers

Shilpa Krishnan, Monique R. Pappadis, Susan C. Weller, Marsja Stearnes, Amit Kumar, Kenneth J. Ottenbacher, Timothy A. Reistetter

Research output: Contribution to journalReview articlepeer-review

41 Scopus citations


Objective Caregivers usually are not involved while planning the stroke survivor's medical and rehabilitation goals and interventions. This review aimed to identify the needs of stroke survivors as perceived by their caregivers. Design A literature search from 2003 to 2014 was conducted using Medline, CINAHL, PsychINFO, and Google Scholar. Sixty-six studies were included. Most studies excluded did not encompass caregivers' perspectives. Four reviewers screened the titles, abstracts, and full texts of the articles for inclusion. The data extracted from these studies were synthetized into metathemes. Results Fifty-two qualitative, ten quantitative survey, and four mixed-methods studies were included in the final synthesis. The studies came from 11 countries. The data synthesis produced following three metathemes: (a) body functional needs, including psychological function, physical function, cognitive function, and uncertainty related to function; (b) activity and participatory needs, including healthy lifestyle, physical activities, speech, independence, cognitive activities, and uncertainty related to activities and participation; and (c) environmental needs, encompassing support, services, safety, accommodation and accessibility, and uncertainty related to environmental factors. Conclusions This scoping review identified a range of needs of stroke survivors as perceived by their caregivers. Incorporating the caregiver's preferences and values into clinical decisions may improve outcomes among stroke survivors.

Original languageEnglish (US)
Pages (from-to)487-505
Number of pages19
JournalAmerican Journal of Physical Medicine and Rehabilitation
Issue number7
StatePublished - Jul 1 2017
Externally publishedYes


  • Caregivers
  • Patient-Centered Care
  • Perspectives
  • Rehabilitation
  • Stroke
  • Unmet Needs

ASJC Scopus subject areas

  • Rehabilitation
  • Physical Therapy, Sports Therapy and Rehabilitation


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