TY - JOUR
T1 - Building a narrative of equity
T2 - Weaving indigenous approaches into community-engaged research
AU - Hardy, Lisa J.
AU - Shaw, Kevin
AU - Hughes, Amy
AU - Hulen, Elizabeth
AU - Sanderson, Priscilla R.
AU - Corrales, Candi
AU - Pinn, Travis
AU - Esplain, Jamie
AU - Cruz Begay, R.
N1 - Funding Information:
Funding: This work was supported by the Center for American Indian Resilience (P20MD006872) and the National Institutes of Health’s National Institute on Minority Health and Health Disparities. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Funding Information:
The parent project for the development of the evaluation was called “Health Resilience among American Indians in Arizona”, (hereafter “Health Resilience”), which is funded by the National Institutes of Health (NIH) and National Institute on Minority Health and Health Disparities (NIMHD), under the Center for American Indian Resilience (CAIR). “Health Resilience” built on prior engaged studies to investigate health and patient–provider perceptions. Project leads (a health scholar and medical anthropologist) developed a strategy to identify and hire community members to join the team as researchers. Past employment and degree status were not considered in the hiring process intentionally to reflect a community-engaged strategy [13]. Community researchers became paid employees beginning with a multiday intensive training session and continuing into data collection, analysis, implementation, and dissemination. The “Health Resilience” project team included community and academic researchers of different tribal affiliations, ages, genders, and life experiences. Data collection included semi-structured interviews, focus groups, and Wellness Mapping activities [14]. Researchers obtained permissions through the American Indian led local organizations and a university institutional review board (IRB). The team gained permission from the Navajo Nation Human Research and Review Board, Hopi Tribe, and Indian Health Service. Once the multiyear project concluded, the team analyzed data and wrote about, presented, and continued “Health Resilience” in different ways.
Publisher Copyright:
© 2020 by the authors. Licensee MDPI, Basel, Switzerland.
PY - 2020/7/2
Y1 - 2020/7/2
N2 - In 2020, global injustice has taken center stage during the uprising of the Black Lives Matter movement and other social movements. Activists are calling attention to longstanding disparities in health outcomes and an urgent need for justice. Given the global socio-political moment, how can health researchers draw on current critical theory and social movements to create structures for equitable outcomes in health research and practice? Here, we demonstrate principles for effective health research and social justice work that builds on community-engaged approaches by weaving critical Indigenous approaches into structural project designs. Our project, “Health Resilience among American Indians in Arizona”, brought new and seasoned researchers together to collect and analyze data on the knowledge of healthcare providers concerning American Indian health and well-being. Four years after the conclusion of the project, the team developed and created a post-project self-assessment to investigate lasting impacts of project participation. In this communication, we discuss the principles of defining and measuring the capacity to build together. This work responds to the call from Indigenous scholars and community leaders to build an internal narrative of change. While we will not present the full instrument, we will discuss building a strong foundation using the principles of engagement for planning and implementing justice and change.
AB - In 2020, global injustice has taken center stage during the uprising of the Black Lives Matter movement and other social movements. Activists are calling attention to longstanding disparities in health outcomes and an urgent need for justice. Given the global socio-political moment, how can health researchers draw on current critical theory and social movements to create structures for equitable outcomes in health research and practice? Here, we demonstrate principles for effective health research and social justice work that builds on community-engaged approaches by weaving critical Indigenous approaches into structural project designs. Our project, “Health Resilience among American Indians in Arizona”, brought new and seasoned researchers together to collect and analyze data on the knowledge of healthcare providers concerning American Indian health and well-being. Four years after the conclusion of the project, the team developed and created a post-project self-assessment to investigate lasting impacts of project participation. In this communication, we discuss the principles of defining and measuring the capacity to build together. This work responds to the call from Indigenous scholars and community leaders to build an internal narrative of change. While we will not present the full instrument, we will discuss building a strong foundation using the principles of engagement for planning and implementing justice and change.
KW - Campus community partnerships
KW - Capacity building
KW - Community engagement
KW - Evaluation
KW - Resilience
UR - http://www.scopus.com/inward/record.url?scp=85088164262&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85088164262&partnerID=8YFLogxK
U2 - 10.3390/ijerph17145148
DO - 10.3390/ijerph17145148
M3 - Article
C2 - 32708798
AN - SCOPUS:85088164262
SN - 1661-7827
VL - 17
SP - 1
EP - 9
JO - International Journal of Environmental Research and Public Health
JF - International Journal of Environmental Research and Public Health
IS - 14
M1 - 5148
ER -